Ellen Meets the Inspiring Talia

Please Ms.Degeneres you have showed you care for many causes you have fought for many through some really hard times in their life I watched your show today while I was waiting for PT to start at Good Shepherd what you did for that sweet little girl was amazing and Ricky was pretty funny i have to admit i am asking for your help no one really knows of our cause or what we go through every day just to live just to stay you can be our voice you can say you care that we matter too I am not doing very well right now medically due to these conditions and their complications you are truly my last hope for awareness will you care or will you like so many others turn your back and ignore us please care we need you thank you please I know my friends come from many causes and communities fighting so hard for the conditions and causes they are affected by I try my very best i do to stand by every single friend every single cause some i and my son are actually affected by some we are not but i fight with a passion and i always will for every single one so why is that not every friend is standing by my cause i have never

asked for major support before and i don't know if i ever will again but this is something that means a very great deal to me they are conditions I battle everyday without multiple brain surgeries point blank me and all those diagnosed like me will die why is it that some of my friends in other cause communities are standing with me while others are not I know this is not specifically your cause and you may or may not be affected by the conditions of which this specific event is about but you always talk about those who do not have to deal with the cause/condition you are dealing with putting themselves in your place helping with the cause now so that cures are found and hopefully they will not have to live the nightmare you have lived and been through well why won't you do the same for me and my nightmare I live everyday and people here on facebook that i have grown to care about live every day or all over the world our conditions too are considered "rare" we have no cure no medicine the only way we live is multiple brain surgeries please we matter too I will always stand up for you no matter what will you stand up for me ?
I am petitioning Ellen Degeneres to do an awareness show about those of us battling Hydrocephalus and Chiari and all brain conditions both of these are brain conditions with no cure we will tell you stories of our lives and the angels who lost their lives
to
these conditions we need help making people aware and finding a cure please Ellen have a show on us this event does not end till we get a show on Ellen for awareness of Hydrocephalus and Chiari and all brain conditions please a plea going out to every friend I have here on facebook and beyond there is strength in numbers and many people are affected by these conditions some even don't know it one has hit the childhood community almost every the time a bra

in cancer child is diagnosed please do not look away and forget us our conditions too are very real and they have NO CURE the only for of treatment is repeated brain surgeries I have never looked away from any condition whether me or my son had it or not please do not look away from mine I know we all have specific conditions we rally behind for awareness and cures well we all want the same thing for different conditions why not join together please help me I beg of you please join and share my event help me raise awareness and make others stand up and take notice that we matter too https://www.facebook.com/events/468155553215261/